Downloads: 0 | Views: 171
Study Papers | Biomedical Sciences | India | Volume 11 Issue 11, November 2022 | Rating: 4.8 / 10
Public Views on Donation and Use of Human Biological Samples for Biomedical Research
Dr. Sandeep J., Dr. Vijaya Hegde
Abstract: Background: Recent advances in biomedical field have increased the value of research on stored biological samples in bio banks to aid in the development of bio medical research in many developing countries. Such research should help in the advancement of healthcare and the tackling of the high burden of disease in those countries. Biological specimens such as Blood, Urine, Tissue samples are usually collected for diagnosis and patient care. The left over samples in the laboratory could make a difference if used for medical advances and improve people?s lives. Any research involving human participants should be guided by fundamental ethical principles in order to ensure the protection of their rights. Hence the aim of this study is to assess the perception of the general public towards donation and use of human biological samples for biomedical research. Methods: A Cross sectional study was conducted among the general population. A questionnaire was developed which was checked for validity and reliability. The questionnaire consisted of two parts. In the first part participants were asked to enter basic demographic details and second part is the participant?s views on donation and use of human biological samples for biomedical research. Online survey was conducted to collect the data. Results: A total of 227 people participated in the survey.93.4% of them agreed to donate biological sample for research. Among them 86.8% were willing to participate in a research related to heredity and genes. 97.8% suggested that consent should be taken before conducting research. About 59.9% thought donors should receive financial compensations, while 82.8% thought they should have the right to withdraw consent whenever they want. 83.7% suggested that Samples donated for scientific research should not use for purposes against the wish of the donors, and 98.2% suggested that the Researchers must maintain the privacy and confidentiality of donor information during the course of scientific research. 57.7 % believed that the ethics committee can decide on the use of stored sample for research if it is difficult to reach concerned donors, but 94.7 % of them want a regulatory body to monitor research done on biological samples. Conclusion: There was an overall positive attitude towards sample donation for biomedical researches. But concerns regarding privacy and confidentiality remained. These concerns lead to an increased demand for a regulatory body to monitor the bio medical researches done on human biological samples. The public participation in bio medical research is possible, taking into consideration the participants rights.
Keywords: Biomedical research, Bio bank, Human biological sample, Tissue donors, Delivery of health care
Edition: Volume 11 Issue 11, November 2022
Pages: 944 - 948